Most Popular Blog Posts & Additional Resources

Our Most Popular Blog Posts:

What Not to Say to a Parent with a Child with EOS or Congenital Scoliosis
Friends and family mean well but often say the wrong things that frustrate parents.  This post has by far received the most views and clearly touched on something with parents of these kids.
https://norasjourney-early-onset-congenital-scoliosis.com/2015/05/26/what-not-to-say-to-a-parent-with-a-child-with-eos-or-congenital-scoliosis/

Everything You Need to Know About Mehta/EDF Casting that Your Hospital or Surgeon Won’t Tell You. This post has information garnered from our own experiences through 8 casts. It also has many tips and suggestions from several other parents who have been on this journey too.
https://norasjourney-early-onset-congenital-scoliosis.com/2014/07/16/everything-you-need-to-know-about-life-in-a-mehtaedf-cast-that-your-doctors-wont-tell-you/

How Do You Know You Have The Right Pediatric Orthopedic Surgeon?
https://norasjourney-early-onset-congenital-scoliosis.com/2015/02/03/how-do-you-know-you-have-the-right-pediatric-orthopedic-surgeon/

The Child Psychologist, Play Therapy & a Doll Named Scully. This blog shares our experiences with play therapy. Nora started having trouble trusting doctors and people, she went through some experiences that were extremely terrifying for her. This post covers the tools we were given to help make the entire process easier. These are tips that you can use too to help your child.
https://norasjourney-early-onset-congenital-scoliosis.com/2014/05/05/the-child-psychologist-play-therapy-a-doll-named-scully/

The Stages of Grief and My Child’s Rare Medical Diagnosis
I believe certain diagnosis’s propel parents to experience the same stages of grief and loss that they experience when losing a loved one. But it’s different. Different in that we jump around the stages not in any particular order and revisit stages we have already been through and thought we were finished with. https://norasjourney-early-onset-congenital-scoliosis.com/2015/04/17/the-stages-of-grief-and-my-childs-rare-medical-diagnosis/

Preparing and Packing for Your Young Child’s Spinal Surgery –What We Did and What We Would Do Differently Now
https://norasjourney-early-onset-congenital-scoliosis.com/2016/09/09/preparing-and-packing-for-your-young-childs-spinal-surgery-what-we-did-and-what-we-would-do-differently-now/

What It Was Like To Watch A Child Have A Mehta/EDF Cast Applied In The Operating Room
https://norasjourney-early-onset-congenital-scoliosis.com/2016/01/28/what-it-was-like-to-watch-a-child-have-a-mehtaedf-cast-applied-in-the-operating-room/

Tummy Time, Back-to-Sleep and Infantile Scoliosis, What Do They All Have in Common
https://norasjourney-early-onset-congenital-scoliosis.com/2015/02/19/tummy-time-back-to-sleep-and-infantile-scoliosis-what-do-they-all-have-in-common/

Deciding Which Surgery To do…or Eeny Meeny Miny Moe
This entry talks about the surgical choices we faced.  Every case is unique but here is the breakdown of the optionms we had.
https://norasjourney-early-onset-congenital-scoliosis.com/2015/07/17/deciding-which-surgery-to-door-eeny-meeny-miny-moe/

Hindsight is 20/20 – Looking Back, What Would I Have Done Differently?https://norasjourney-early-onset-congenital-scoliosis.com/2015/11/03/hindsight-is-2020-looking-back-what-would-i-have-done-differently/

To learn more about congenital scoliosis and Nora’s journey with more frequent updates, follow us at
http://facebook.com/norasjourneyearlyonsetcongenitalscoliosis


 

Children’s Spine Foundation: http://childrensspinefoundation.org/

Infantile Scoliosis Outreach Program (ISOP) http://www.infantilescoliosis.org/

Curvy Girls http://www.curvygirlsscoliosis.com/

Shriner’s Hospitals for Children: https://www.shrinershospitalsforchildren.org/

Infantile Scoliosis Early Screening Guide http://www.infantilescoliosis.org/screening-guide/

 

Follow us on Facebook too, for more frequent postings, updates, and relevant news in the mediahttps://www.facebook.com/norasjourneyearlyonsetcongenitalscoliosis

 

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